Conference rdvax::grateful

    
    
    
    
    
		National Leigh's Disease Foundation  (NLDF)
		-----------------------------------
	
	Founded October 3, 1988, to promote medical research into the cause
	and treatment of Leigh's Disease.  Tax exemption as a non-profit
	organization was granted by the IRS on October 31, 1989.

	LEIGH'S DISEASE - A degenerative disease of the central nervous
	system that usually begins before age two years and leads to death
	in most afflicted children before the age of ten years.  The major 
	effects of the disease are poor growth, loss of muscular control,
	visual problems, and difficulties with swallowing and breathing.  It
	is probably caused in most cases by an inherited defective gene or
	genes.  The abnormal gene causes a disturbance of energy metabolism
	in the central nervous system, leading to the deterioration and 
	death of brain cells.  No effective treatment is known.  Leigh's
	Disease is very rare.  There are so few medical publications dealing
	with Leigh's Disease that many physicians have never heard of the
	disease.  Because Leigh's Disease is difficult to diagnose, however,
	there may be many affected children who die without the correct
	diagnosis being recognized.

	MEDICAL RESEARCH - There is some limited research being done by Dr.
	Peter Stacpoole and Dr. Richard Haas.  Their research, however, is 
	limited primarily because of lack of funds.  Their efforts and the 
	efforts of other researchers who attempt to study this devastating 
	disease often cannot find funding for research.  Instead, private 
	and public funding often go to better known disease such as cancer,
	heart disease, and presently AIDS.

	NLDF organizers realized that research being done for children dying
	of Leigh's Disease was limited.  As a result, the NLDF was founded
	to bring financial support to those scientists who are already 
	studying Leigh's Disease and to encourage other physicians and 
	researchers to take a serious look at Leigh's Disease.

	NLDF also provides non-financial support to families with Leigh's 
	Disease victims; fosters a network of communication among affected 
	families; and stands as an association of patients, families and
	friends in a war against Leigh's Disease. NLDF currently communicates
	with families all across the U.S. and in foreign countries.

	
    

    Does ne1 know how to get to the Newburyport Ma. DAV hall?
    
    I hear there will be a tite-jammin band there, (I think they're called
    the Earth~Rants or sumthing like that ;^) 
    
    tia,Andy

    I think they are called the Dirt~Pants Mr Burns and I hear their
    drummer is one of those long haired hippy weirdos who follows that 
    band around the country....be very afraid!!!!!
      and no I don't know how to get to the DAV hall, but I'll drive in
    with ya or meet you there..
    chris

    maybe whereas there is safety in #'s, we can get a few of us to band
    together should we feel threatened :^) 
    
    If you want to meet me on your way, that might work out since Larrytown
    (that's *Lawrence* for the nickname challenged people :^) is in betwixt
    Nashwah and Nuberryport.
    
    ndy

    If ne1 is wondering if this band, the Earthworms, is worth ne sort of
    drive, you can go by me that they *most definately are*!!!
    
    Ne doubts I had (I had many :^), quickly vanished shortly after they
    began playing at their last gig in Newburyport.  Very nice jamming!!!
    
    Thanx again Earthchants!!! Looking forward to Sat. :^)
    
    Andyburns :^)

    And lest one forget there is free beer..
    That would be FREE beer...I know Steve-O thinks that that is the only
    reason i am going.......
    chris_actual_fan_of_the_worms

    
    EarthdancE BENEFIT show for National Leigh's Disease Foundation 
    
    Saturday, August 20th
    8:00 -> 12:30
    DAV hall, Newburyport MA
    
    This is our second benefit show towards this foundation. ALL proceeds
    and donations go directly to NLDF. (more info, see note 401.1)
    The folks at the DAV have asked us back and donated the hall. I guess
    we didn't piss 'em off too bad back in April.  :-)
    
    The donation is $5- 
    All ages welcomed, ID to drink.
    
    We've a new additon to the band in a second guitar player. His name
    is Mike, and he's added some tasty fullness to our sound. If you're 
    still wondering what's up with these EarthdudeS, here's a cheap chance
    to check (note my cunning use of `alliteration') out the band, and it's
    for a VERY good cause...
    
    Direx to follow.
    
    Thanks!
    
    Steve~O

Newburyport DAV Hall



Directions:

495 North. Take exit 55 (Salisbury/110) go straight until 
RTE 95 on right (SOUTH). Take it!
Take exit 57 (Newburyport/113) Take a LEFT off exit (east)
GO for ~2+ miles until RTE 1 SOUTH. Take it!
GO. The DAV is about 1/2-3/4 mile on RIGHT.

If you're coming from 95 heading NORTH, it's still exit 57, but take
a RIGHT off the exit to 113




Questions about ED or the show,  call  (603) 881-DUDE
                                 or E-Mail SALEM::MARTIN_S 

    peace

    Any one in the southern nude hampster area who is thinking abouts 
    checking it out and wants a ride call dtn 275-3233 or email the above
    node....
    earthwerm on
    chris
    

       I will also be in attendance....

    
    Thanks to those who attended the EarthdancE benefit for
    Leigh's Disease last Saturday, the 20th.
    Hope you enjoyed the music! Things went well, and we raised almost
    $500 towards the cause!  :-)
    
    
    This Saturday, Labor Day weekend, Sept. 3rd...
    
    "EarthdancE & Friends" at the STONE CHURCH in Newmarket.
    
    ED will do about a 1.5 hour set, and will then be joined by
    musicians from other bands who jam the Church...it should be
    interesting and fun. 

    for anyone who has not had the pleasure of checking out the church, try
    it out..the place rocks....and it is home to some good bands...truffle,
    the olivz(formerly father nature) plan b, who played there friday
    night....and i believe slipknot will be there pretty soon...
    kinda creepy..band on the altar etc etc..and no communion bread
    just jagermeister that is cold and served up right....
    Anybody up for earthdance send mail, i'll be driving up..
    earth on 
    chris

>    who played there friday night....
	
	wow. musta bin quite a show!!

    they rocked and THEIR  bass player dropped some bombs there martin (so
    tell andy to blow us away)..
    jay only plan b played but the others i have seen there.....a cool
    weird kinda place
    

	u mean the who didn't play there???
	
	
	oh. bummer.
	
	

	
	
	;-)

    yer humour sorta bypassed me..:^)
    monday a.m.  whaddya expect?
    chris_asleep

plan B is a pretty good band!

saw 'em at martha's for dave weiss's return pahty.

    JC
    i was there that night as well.....i saw some guy wearing a dechead
    t shirt..he sorta disappeared into the crowd and i walked up and asked
    a guy who was standing next to him if he worked at dec..he said
    no so i didn't inquire further...new guitarist isn't that bad either..
    they played some new tunes at the church the other night

    
    
    Well, well, well....
    
    For all who'll be on a roll from three show in a row this week,
    don't take a night of rest!
    
    
    EarthdancE will be at the BOSTON TRADING COMPANY in Manchester, NH
    this Friday evening, Sept 30th...
    
    I heard it's nice place, plus... NO COVER and $3 pitchers.  :-)
    (direx when I get 'em)
    
    
    

    Seeing as Steve-O can't find his way into work today, let
    alone to Manch-hattan (more colloquial slang).....direx to the BTC
    are as follows....this place is on Elm Street..used to be the old
    Club 777....from rte 3 north take the exit for Bridge street....
    right next to WMUR TV 9/ Granite st grill..
    you will go thru a sest of lights and pass by the dancing bear
    restauranto on your right..take a right onto elm street..go up past
    St MAry's bank and you will see a Dunkin Donuts...The BTC is right
    there.
    From 93, take 293 to the south willow st/mall of nh exit....right off
    the highway go straight until you come to a y intersection.. a
    d'angelos will be on your left....stay left over some train tracks
    andthe next intersection is elm st.....go right and the BTC is up on
    your left a 1/2 mile down..

    
    Thanks for posting those, Chris....  :-)
    
    I made it in. (had a NICE show last night)  :-)
    
    
    
    Steve-O 
    
    ps. I lied: pitchers 'o beer are $4 not $3!  But still NO COVER charge!
    :-) :-) :-)
    
    Hope to see some unfamiliar faces tonight...
    
    

      Its a marvelous night fer an Earthdance....I'm there