| I wish I could help but I don't have info...only questions of my own
which I will hold off on.
However, there is a medical notesconference...VMSZOO::MEDICAL. Perhaps
a reader there has some insight.
Whatever the diagnosis, I hope you will be able to do something to help
your child along. I know how frustrating it is to watch them struggle.
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| Please see the many notes about development. Most of them are listed
in note 13.11, which is a listing for keyword DEVELOPMENT. For a
current listing about DEVELOPMENT, please do the following command
(allow some time for this to complete): DIR/KEY=DEVELOPMENT_MISC.
You will find a recent discussion about a baby who is slow to develop.
You can also do a search, DIR/KEY=ILLNESSES_MISC. There was a recent
discussion about cerebral palsy.
Laura
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| Can you elaborate a bit more on what your son is/isn't doing?
When my daughter was six months old, if you put her down on the floor
on her tummy she could raise her head and shoulders off the ground
(supported by her arms), but that was all. She didn't try to crawl,
or roll over. She didn't "stand up" or trampoline on my lap which I
think is another six-month milestone. She didn't roll over until she
was 7.5 months old, didn't "crawl" until 9 months (then it was
tummy-squirming, real crawling wasn't until about 10 months), didn't
sit unsupported until 8.5 months. At six months she did kick her
legs in the air when lying on her back, reach out for things, grab
and hold light objects, hold her head up when supported sitting on
someone's lap, turn her head to respond to noises, look at things,
smile, laugh, make baby noises. Just for the record, she first stood up
(holding on to the furniture) at about 10 months, and started walking round
the furniture at about 11 months. She started to walk alone at about 14.5 month.
She's now 2 years 9 months old - walking, running, jumping, climbing etc, in
other words, perfectly normal. When she was a baby she had her first
"milestone" check at 8 months. I told the doctor that I was worried
that she (my daughter) wasn't doing much and the doctor just said
"Don't worry - she will" - and she did! Having said that, there are things
that other children of the same age do - eg pedal a tricycle, walk downstairs
on their own - that she doesn't do. The only difference is that now, I know
that one day she will do these things, when she wants to, and when she's ready.
I do hope that it turns out that there is nothing wrong with your son and I
hope I don't raise false hopes by entering this. I know from
experience how worrying it is when you see other people's babies
doing so much more than yours, but it doesn't always mean that there
is something wrong.
- Janet
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| I just wanted to add that my prayers are with you, that this will turn
out to be nothing more than a happy, content baby, who just will do
thing in their own time.
From a personal note, the EMG is not *that* painful. I had several due
to back problems, which eventually led to two spinal surgeries. The
test does require you to lay still for a period of time, on you back.
The probes are a little like the scalp monitors used during labor. Not
particularly painful, I just didn't like them because the alchol they
used to clean the skin was COLD! Trust me, if it was an awful
experience I'd be the first to tell you.
From where I'm coming from, it sounds like you are reaching "doctor
burnout", and maybe you simply need to do what I did; except for
absolute necessities, keep the doctors appointments to a minimun for a
couple of months. Then after you've got a clear head, and some
respite, schedule the testing.
Keep your chin up!
Lyn
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| Something I have learned about development from my daughter's physical
therapist is...You CAN influence movement by working with the child and
a therapist. When Shannon came home from the hospital, she was given a
developmental evaluation by a group of therapists from Easter Seals.
(the neonatologist referred them to us). When babies are still young,
it is hard to determine whether they are "slow developers" or if there
are "problems". So, working with them either brings development or
helps with a diagnosis. Either way, you have fun with your baby and
learn all the facinating ways the human body develops (head down,
center out).
From my own experience, I would suggest that you don't only seek
medical attention, but request a developmental eval from some
therapists! Our therapist is very helpful with milestones...seems they
encompass wide time spans (wider than all parenting books and pedi
recommendations). "Normal" (oh I hate that word) development for
sitting is anywhere from 4-9 months, Walking from 9-16 according to my
source.
Hang in there and press on for help!
-beth
It helped us, Shannon's "problem" was just not (as far as we can tell
at this point) CP, but rather preemie tone -- mom and baby worked hard
to overcome it!
worked hard to overcome it.
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| Forgot to mention something that may/not help. Medical experts
(doctors who treated my daughter during her 3 month stay) told me that
given the brain hemorrage and hydrocephles (sp?) she had suffered, that
she WOULD PROBABLY HAVE CP but couldn't tell to what degree. Turns
out, the therapist does suspect any problems at all and has decreased
the visits from every week to every 3 and will decrease them further
when I am ready!!!!!
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