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Conference moira::parenting_v3

Title:Parenting
Notice:READ 1.27 BEFORE WRITING
Moderator:CSC32::DUBOIS
Created:Wed May 30 1990
Last Modified:Tue May 27 1997
Last Successful Update:Fri Jun 06 1997
Number of topics:1364
Total number of notes:23848

1154.0. "gastrostomy?" by MEMIT::GIUNTA () Fri Oct 04 1991 10:43

    Has anyone had a child come home on either NG (tube) feedings or with a
    gastrostomy?  My son, Brad, who is 5 months old is scheduled to have
    his ostomy reconnected during this latest hospitalization (we've only
    had him home 13 days out of the 5 months), but they are proposing that
    he come home with a gastrostomy.  That is where they surgically put a
    tube into his stomach so that he can be fed through that all night. 
    The other choice is the NG tube down his nose, but his pediatrician is
    pushing for the gastrostomy.  We're not even sure that he will need to
    be tube fed when he comes home, but the doctors want to have something
    there in case he needs it to grow.
    
    I was wondering if anyone had dealt with a gastrostomy, and about how
    long it stayed in.  I'm also curious about the procedure used to take
    it out, and how the healing takes place since it's been explained that
    there is no surgery needed to remove (like a CVL which Brad has had
    before).  If anyone has any information, I'd appreciate it.
    
    Thanks,
    Cathy
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1154.1geeLUNER::TRUMPOLTFri Oct 04 1991 13:2616
    Cathy,  I never had to go through this for a child. but a friend of
    mine's son had to have a gastorstomy done due to the severity of his
    colities.  My mother has a tube in her stomach so she can do her kidney
    dialis from home and the doctors told her to remove the tube isn't as
    bad as putting it in.  All they have to do is make a small insision and
    slip the tube out.  So I guess that is all they will hve to do for your
    son. 
    
    I feel for you and your son for having to go through all of this at
    such a young age (5 months).  I hope and pray that everything goes ok
    for him.
    
    Please keep us posted.
    
    Huggs
    Liz
1154.2Medical note might helpPROXY::HOPKINSVolunteer of the monthFri Oct 04 1991 15:335
    Cathy,
    One thing I forgot to mention in my mail to you is that you might also
    enter your note in VMSZOO::MEDICAL.
    
    Marie
1154.3thanks for the repliesMEMIT::GIUNTATue Oct 08 1991 09:5513
    Thanks for the help.  The surgeons do not want to do the gastrostomy
    when they reconnect the ostomy since they don't know that he will need
    it.  If it turns out that Brad must have one, they will do it at a
    later date.
    
    The surgery is now scheduled for Friday, but since he still has an
    oxygen requirement from the virus he caught while being in the
    hospital, it may get postponed til next week.  They will be deciding
    tomorrow so that I can let my blood donor know if he should go in or
    not.  I just want to get this all over with and have Brad get better.
    
    Regards,
    Cathy