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Conference moira::parenting

Title:Parenting
Notice:Previous PARENTING version at MOIRA::PARENTING_V3
Moderator:GEMEVN::FAIMANY
Created:Thu Apr 09 1992
Last Modified:Fri Jun 06 1997
Last Successful Update:Fri Jun 06 1997
Number of topics:1292
Total number of notes:34837

502.0. "Perinatal Loss Committee:" by KAOFS::M_BARNEY (Formerly Ms.Fett) Fri Apr 16 1993 19:01

    As you know, two years ago my first pregnancy ended in the stillbirth
    of my son, Daniel in the eighth month. We have had the joy of having
    another child, Charlotte, who will soon be one year old, a little over
    a year later.

    Through the recommendation of my doctor, I have become a member of a 
    committee on Perinatal Loss at the hospital where both my children 
    were delivered, the Grace.

    the committee has formed to analyze the present system of hospital
    handling of perinatal death, from miscarriage to stillbirth, and to
    recommend  improvements for the benefit of the parents who have
    suffered the loss.

    They were interested in hearing what "my side" of the story was, as I
    am their "consumer", being the only one there who was not a staff
    member but a mother who has been through that experience. 

    Among other things, I told them about this conference and just how much
    it helped me deal with the loss and grief (after I had to explain how
    it worked of course!).

    We discussed a number of various issues from the time of discovery of
    death to grief issues after the parent(s) have left the hospital.

    What I would like to discover here is everyone else's positive and
    negative moments in their experiences of perinatal loss. If you had to
    critique the staff at the place where you suffered this loss, what
    would your opinions be?

    I realize that hospitals have different methods and programs for
    dealing with this issue, but I am sure a lot of aspects are nearly
    identical.

    Please note, I may decide to extract parts of this note for the
    committee's viewing, so if you don't want me to, please say so. (The
    committee has 2 chaplains, 2 Nursing Specialists, and the hospital
    social work office head.)

    Monica 
    (Thanks ahead of time!)
    
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502.1Need a memento-creation kitTLE::JBISHOPFri Apr 16 1993 19:1013
    The only criticism I have is that neither Mary Hitchcock nor
    Nashua Memorial had a camera which could take a good close-up
    picture of the babies.  So we have only our memories and the
    blurry distant images produced by their instant-style Polaroid
    camera, which had to be over three feet from something to have
    it be in focus.
    
    I wish we had better pictures of Christopher and Jenny.
    
    Otherwise I think both places did the right things, though 
    Mary Hitchcock seemed better prepared than Nashua Memorial.
    
    		-John Bishop
502.2After careWEORG::DARROWMon Apr 19 1993 13:5335
    
    I see a few needs of mine that weren't met:
    
    1)  Attending physician needs to be especially empathetic.
    In the case of one of my miscarriages, the physician had all
    the bedside manner of a brick.  (He was the ob/gyn on call
    at the time.)  The other two times, the doctors were more
    caring and attentive.
    
    2)  More attention needs to be paid to the long-term issues
    and problems.  For the doctor to say "some couples feel depression"
    isn't enough.  Support groups should be in place and encouraged.
    Referrals should be readily available to counsellors who are 
    experienced with this sort of loss.  The emphasis should be on
    **counselling as the norm, not the exception**.
    
    It's not enough to say "this is available."  I think some people
    need a nudge. I'd rather hear "many of our patients have benefited
    from this. I think you might too." (All of these changes were made by
    the practice I use ... but after my losses.)
    
    3) Follow up with more than just a 3-week medical check up. 
    My second week after each loss was a real rollercoaster.
    I could have benefited from a call from the nurse practitioner.
    
    4) If a patient appears to be at risk for repeated problems,
    encourage them developing a relationship with a staff member who
    has had similar experiences.  One of the nurse practitioners
    at my ob/gyn's had been through the same medical problems I had.
    Having her there to talk with through each pregnancy really
    helped.  She understood my fears and concerns first-hand, especially
    in this last (successful) pregnancy when everyone else couldn't
    understand my caution.
    
    --Jennifer
502.3thanks, so far!KAOFS::M_BARNEYFormerly Ms.FettMon Apr 19 1993 14:1311
    Thank-you John, Jennifer, these are VERY good critiques.
    BTW John, I had the same complaint about the camera thing,
    I voiced it and they gave me smiles because they had already 
    discussed using a donated 35mm to shoot a ROLL of film for each
    child and give the roll to the parent(s). They tell me few 
    parents refuse pictures.
    
    Does any one know where Lyn Tripp is? If she can, I'd love to
    have her comments.
    
    Monica
502.4What my neighbor went throughBCSE::WEIERPatty, DTN 381-0877Mon Apr 19 1993 14:5474
    Hi,
    
    I haven't been through this, but my neighbor has, and can offer a few
    things that made their grieving SO much worse.  She was 8 1/2 mos
    pregnant with their first (badly wanted) child.  She went into the Drs
    office for a regular checkup, but he couldn't find a hearbeat.  They
    sent her to the hosp. for an Ultra-Sound, and found the baby was no
    longer alive.  Apparantly the umbilical cord had become twisted and
    twisted to the point that the baby essentially "starved to death".
    
    This happened on a Thursday.  They said that she would have to deliver
    the baby, but there was no one there to do it at the time, so she'd
    have to come back the next day.  This was mortifying to them.  They
    sent her home that evening and told her to come back the next morning. 
    She was supposed to be induced ~10am.  At about 2pm, they finally
    started her.  SHe made it QUITE clear, for obvious reasons that she
    wanted to minimize ANY amount of pain to herself.  Seeing as there
    wasn't the consideration of the baby, the doctor assured her it would
    be fine.  She kept asking and asking, but they gave her absolutely
    NOTHING for her pain.  Her Dr. got called away, and she was left with a
    few nurses for a while.  In a lot of pain.  But they still wouldn't
    give her anything for it, saying it was "too soon".  Apparantly her
    labor progressed rapidly, and suddenly it was "too late" for her to
    have anything that would be effective.  I'm a little fuzzy on the
    details here, but it seems the "dr" somehow got lost in the shuffle, or
    she just progressed SO fast that they couldn't get him back in time,
    but whatever happened, she ended up delivering their baby without ANY
    medication whatsoever, and without a much-needed episiotomy.  She
    delivered so late that they wouldn't let her leave, and they had to put
    up a BIG stink for her to be able to go home that Sunday.
    
    The hospital that they sent her to was in Boston, and they live in
    Nashua, and there were no accomodations for her husband.  They shuffled
    him right out that evening, and wouldn't let him stay.  Aside from
    having to lose her baby, and the tremendous pain she went through in
    the process, she was forced to endure it alone.  I don't remember the
    name of the hospital.  
    
    Obviously all experiences aren't this bad, but there were some
    "simpler" things that could have been done to help them through this. 
    A Dr dedicated to HER and her needs would have helped a lot - perhaps
    someone more experienced in this area, to help understand all the
    emotions of it all.  A place for her husband to stay by her side would
    have been a tremendous relief.  Also, she was in the maternity ward the
    whole time, and I thought that was pretty heartless to make her stay
    there and see all those other women WITH their babies, knowing she'd be
    going home empty-handed.  I was also surprised at how "unhelpful" the
    hospital was in preparing the funeral arrangements.  They certainly
    weren't thinking about funeral arrangements, and Dad was more than
    distraught about the whole thing, but was left with ALL the decisions
    of where/how/when to bury their daughter.
    
    One other thing that may be helpful .... more "out of the hospital", I
    know that when she went home, she just closed the nursery door, and
    didn't even want to know it existed.  They had added a room just for
    baby, put in a swimming pool so it would be more fun for them being
    "around the house" with their newborn etc. and there were telltale
    signs all over the house that there would soon be a baby living there.  
    It seemed like it might have been helpful if someone could have gone in
    and taken the "baby items" and put them all in the nursery or someplace
    that could have been out of sight unless she wanted to see them.  She
    once told me it was SO hard to open the cabinet to get a glass, and see
    the baby bottles there - but she didn't have the strength/heart to "put
    them away" either.  I think if they'd just been "put away" in the first
    place, it might have eased her suffering.
    
    I hope that some of their pain may make it easier on someone else. 
    They have since had a little boy, who is a healthy happy, much loved 2
    year old, and they all seem to be dealing with the loss of their first
    born.
    
    Hope this helps!
    Patty
    have helped her to 
502.5Location is important for what it "says"TLE::JBISHOPMon Apr 19 1993 15:129
    Frankly, I'm glad we were in the maternity area: I think it was
    much more healthy, psychologically, to have the hospital say to
    us by that location "You are people who are parents, but your baby
    is dead," than to say "It's only a minor bit of tissue loss, not
    a baby at all," which would have been the impact of being in a 
    non-maternity area of the hospital.  It's a real loss, and it helps
    to have the loss supported and recognized as a real loss.
    
    		-John Bishop
502.6I disagreeKAOFS::M_BARNEYFormerly Ms.FettMon Apr 19 1993 17:2325
    John,
    I guess it depends on each person - I made it very clear to my
    doc that I did NOT want to stay with the new moms - this was much
    much to painful for me. I felt that all I would share with these
    women was that we went through a delivery; but all the other moms
    would not be focused on what they went through in delivering the child,
    but focused on the child itself. I could not bear the thought of 
    being with these happy women and they children - there was too much
    bitterness and loss to wade through before I had the strength to
    face new mothers.
    
    Patty,
    Your neighbour's story sounds very very familiar, although I feel
    the difference was that I was treated with much more care and 
    respect, and this probably changes the colour of the experience.
    They had me wait a whole week before they induced (hoping that
    I'd go into labour on my own) which somehow made it easier to
    accept and prepare myself for the delivery. It took 32 hours from
    the time the prostaglandin went in to delivery, but everyone was
    great. 
    I hope your neighbour has had the opportunity to give some feed back
    to HER hospital about her experience. And tell her congrats for her
    happy healthy child!
    
    Monica (who still misses Daniel)
502.7Sensitivity regarding ultrasoundsCSTEAM::WRIGHTTue Apr 20 1993 16:5134
    I had an ultrasound with my first child, who was healthy.  Then I had
    an ultrasound with my last pregnancy, at eleven weeks, which revealed
    that the baby was not living.  The difference between the way each
    ultrasound was handled was significant.  
    
    With the first (healthy) baby, the ultrasound technician cheerfully 
    exclaimed over the heartbeat, the size of the baby, etc.  There was
    almost a party atmosphere in the room.  With the second (unliving), 
    the ultrasound technician was utterly silent.  When I asked her
    questions about what I was seeing on the screen, she just kept saying,
    "I don't know, you'll need to talk to your doctor when the pictures
    get developed."  Well, that didn't fool me.  I knew she knew and that
    she wasn't allowed to tell me.  Afterwards, they told me I had to go
    to my doctor's office to get the official "results".  So I ended up 
    waiting over 2 hours in my ob/gyn's office, (full of happily expectant
    woman, by the way), to hear the confirmation of what I had read in
    the eyes of the ultrasound technician.
    
    My recommendation would be that ultrasound technicians be allowed to 
    tell the parents the bad news, if the parents ask them to.  Perhaps
    the technician should first call the doctor to get a verbal OK, but
    it would be easier for many parents if the person who did the test 
    could just tell them, then and there, and perhaps point to the screen
    and explain things.  
    
    Jane
    
    P.S.
    Re -.4.  Making a woman go through labor and delivery without any 
    medication for a baby that is already known to be deceased is, in my
    opinion, equal to taking out someone's appendix without anesthesia.
    In other words, I would probably talk to a lawyer about a malpractice
    suit.  
    
502.8the nurses were very kindSALES::LTRIPPTue Apr 20 1993 17:1652
    Monica, 
    
    I promised I add a reply, and I won't let you down.
    
    My only regret, as someone else related is that the polaroids wern't
    all that clear.  Since we lost Stacy in 1985 the maternity ward has had
    a nice 35MM camera donated.  In fact it was donated by a family who had
    had a birth loss.  I had the polaroids duplicated, because my mother in 
    law insisted she have a picture of her grandchild.  At the time I
    thought it gross, but was happy to comply after I saw the quality was
    actually better than the original.
    
    One of the kindest remarks I remember was after I was wheeled from the
    L&D area to a private room, in a area fairly remote from other new
    mothers on the post-P floor, as she was getting me settled (my husband
    had already left) she looked at me and said "it's really OK to cry
    here"  I suddenly realized I didn't have to be stoic.  They were very
    tuned into my needs, I had seen social workers, clergy and others
    through labor.  The OB knew there was no concern for the baby and
    ordered me enough medication that I basically slept for 10 hours, woke
    up pushed twice and it was over, right in the labor room, no epidural
    at all.
    
    My only downside was a fight with the Catholic church, they flatly
    refused to baptize our baby.  We made this one of our first requests,
    even before the labor was induced.  They reasoned that since the baby
    had not lived, the baby had committed no sin, and therefore should not
    be baptized.  The staff finally contacted a woman minister from a
    church next door to the hospital who was very willing to baptize her.
    As a note, I am protestant, husband is Catholic, we were married in His
    church, but I was registered as Protestant in the hospital records.  We
    asked his parish priest, as well as the hospital Catholic chaplain who
    refused.  My father inlaw took the issue to someone higher than the
    local priest, and he says the policy has been changed.
    
    We had our baby buried in a white Christening gown, with my husband's
    grandfather.  Although it is considered a "single" grave, the baby's
    casket is very small and the local cemetary commission allowed us, and
    several others in the same situation to do this.
    
    Ironically, the week we lost Stacy in '85 the hospital had seven
    neonatal losses for various reasons.  One of the other babies was
    buried in the same place, by the same funeral director on the same
    morning.  Even the funeral director was having a difficult time dealing
    with this.  He was most kind, and charged us next to nothing for his
    services.
    
    Sorry to be so long, I know I've related parts of this in different
    notes, and I agree we need something to address this.  It still hurts,
    especially as her birthday approaches in June.
    
    Lyn
502.9UltrasoundWEORG::DARROWWed Apr 21 1993 13:5116
RE: .7

The same applies to "good" ultrasounds.  My husband and I were on pins
and needles for the 6-week ultrasound with my third pregnancy.  
The technician wasn't saying anything, even though we'd told her 
I'd had two previous miscarriages. She *did* see a heartbeat, but 
didn't say anything.  It was only after we asked that she said
everything was ok.  (Unfortunately, it turned out that I miscarried
anyway.)

I had a similar experience with my fourth, successful pregnancy.
I had an ultrasound at Brigham's following my amnio.  A doctor did
the ultrasound that time, and took about 1/2 hour but didn't say a
word.  Again, we had to prompt him to tell us what was happening.

502.10Memorial was very helpfulASIC::JPOIRIERWed Apr 21 1993 15:1864
 I too think this is a wonderful idea.

 Our son was born at 5 1/2 months, he died shortly after.  Couple things that
 I can think of that would have help us:

   - Like everyone else, I wish we had more pictures.  We do have a larger (5
   x 7) one but the idea of a whole roll of film would have been so much
   nicer.  

   - I had one (to me it was major) problem with the hospital when I was
   there after the delivery.  They sent someone to ask me questions about the
   baby so they could fill out the birth certificate.  She asked all the
   questions to get the form filled out, then said very cheerfully, "so, how
   is the baby doing?"  No one told this person that our baby had died!  It
   may sound trivial, but this was only hours after our baby had died, she
   was the first person that I had to tell this to and I couldn't believe
   that she wasn't told this before.  

   - Some help/guidance/information on funeral arrangements would have been
   appreciated.  We were told that we would have to make some kind of
   arrangements but didn't really know what/how to do this.  I know now that
   it's as simple as going down to the funeral director and working it out
   with them and many provide services at *very* minimal costs to the
   parents.  I had spent 4 days in the hospital worrying that this was going
   to cost us thousands of dollars.  (My father-in-law recently passed away
   and it had cost >6,000 for the funeral, I just assumed that it would be
   that much for us too.)  Had we been told right away that this was only
   going to cost ~$100, it just would have been one less thing to worry
   about.  Maybe hospitals could provide a list of funeral directors that
   offer these services for infants, maybe even have the hospital make
   initial contact to get the arrangements started.  It was very difficult
   for me to have to go and explain this to a funeral director, had he known
   some information upfront before we talked to him, I think I would have
   been much more comfortable.

 In general, I think the hospital handled this very well.  I was at
 Memorial where they seem to see these situations more often then other
 hospitals.  They do inform you of group counseling, but no one ever gives
 you that nudge to go.  (I haven't yet, considered it many times though.) 
 Some ideas that I could think of for after you leave the hospital are:

   - I too could have used a call or two from them, I think it would have
   been nice to hear that they still remembered me and still cared.  I did
   receive some information in the mail, with numbers to call if I needed
   to, but I think if they had actually called me, I would have been a help.

   - And I VERY MUCH agree with the OB's needing to do more then a one-time
   check up after to see if your body is back in shape.  I've found another
   OB due to the lack of concern that mine showed.

   - I haven't reached the one-year anniversary of our son's birth/death but
   I'm already thinking of how hard it is going to be.  What about the idea
   of the hospitals sending out special cards or something at that time?  I
   suppose there are two sides to this, maybe this would be a painful
   reminder, but on the other hand, wouldn't it be a help to know that your
   baby wasn't forgotten?   Just a thought.

   - I would have appreciated a list of books/articles to help deal with the
   death. 

   Jean

    
   
502.11More sympathetic staff!HELIX::LEGERWed Apr 21 1993 18:0765
    This is a real sensitive topic for me...
    
    I was pregenat for my 1st in August....we were very excited, as we had
    waited almost 5 years before we decided to have children.  When I
    started seeing my OB, everything was going great.  I had an ultrasound
    at 7 week, and she said everything was great, then 3 days later, I has
    problems. I called the Dr, and was seen right away.
    
    I went for the ultrasound, I had both the external and interanl, and it
    was very wired.  The Tech would not say anything about what she saw/did
    not see... at one point she actually asked me if I was sure I was
    pregnant.  At that point I knew something was wrong.  I went back to
    the Dr's office to wait for the results.  I was seen by a nurse
    practioner...she asked if anyone was with me (definate sign something
    is wrong!), I said no...they told me that there was no heartbeat etc,
    but wanted to do a blood test to make sure (to see if my hormone levels
    were ok.
    
    I had to come back the next day at 2pm...(that was the longest 24hrs
    ever!!)...so Hubby and I went into the room, at this point I was really
    upset, I would have thought the nurses would have known what was going
    on, but NO, they made me get on the scale, weigh in, and get changed! I
    refused, because I knew it was going to be bad :-(
    
    Well, the DR was pretty good.  She told me about what had happned, and
    of my choices for a DNC or to pass it naturally, I opted for the DNC
    immediately, but they made me wait a day to make the decision, so 2
    days later I had the procedure. 
    
    I think my biggest complaints were 
    
    1) I went to the Dr's every afternoon that week, the people knew me by
    my first name, but he stupid Nurse still made me Pee in a cup, get on
    the scale and change....I refused and explained I knew what was
    hapening...
    
    2) the Dr was great, she explained my choice, and told me I had to
    greive, that it was a loss that I would feel for a long time.  they
    gave me a phamplet on books and support groups, but didn't really push
    anything.  I really wish they would have, because to this day, I could
    really use support...
    
    3) When I went to the hospital to have the procedure, the people were
    great. Very accommodating...I requested medication to take the edge
    off, and they gave it to me.  All in all, the procedure was harmless
    physically, but emotionally I was a basket case..I think there was
    something that could have been done to prepare me for this???
    
    4) a week after the surgery, when I went back to the doctors for a
    checkup, the other DR, made a comment, well it wasn't a real baby, it
    was just matter.....and hoped it would make it easier for me to deal
    with it... NOT!!!!
    
    The difference between the 2 drs I had were worlds apart!
    
    As June approaches, I feel I am going to have a hard time, since I was
    due on June 3rd.  We are trying for another one, but I am real scared
    to go through everything again.  I think if I had recieved a little
    more push towards some support, I would have a easier time dealing with
    it than I am right now ....
    
    Sorry for rambeling, this is the first time in a long time I have
    discussed it :-(
    
    Anne Marie
502.12ASDS::PEACOCKFreedom is not free!Wed Apr 21 1993 19:1225
   Hmmm... I may end up getting slapped as insensitive, but I am seeing a
   pattern here, and I wanted to ask something..
   
   Several people have mentioned that they received information about
   support groups, but would have liked some nudging as well.  I guess I
   am having some difficulty understanding this. Exactly what sort of
   nudging would have been acceptable in a situation like this?  Having
   been through it yourselves, what sort of nudging would you give others
   also going through it?  Given that many of us have never experienced a
   loss like this, what sort of nudging would be OK from the rest of us?
   
   I guess the difficulty I'm having is being taken seriously.  I know
   that when I've gone through difficulties of other sorts, I was
   indifferent or even opposed to accepting advise from people who had
   never been through that particular difficulty.  Correct or not, my
   attitude has always been that if someone had not experienced this
   difficulty, they couldn't possibly know what I was feeling, and
   therefore their advise was, well, somehow not good enough.  Given that
   mind set, I'm not sure what I would say to anybody without being
   brushed off as not knowing what I was talking about.
   
   Peace,
   
   - Tom
   
502.13helpKAOFS::M_BARNEYFormerly Ms.FettWed Apr 21 1993 20:0725
    Tom,
    In most cases the "help" comes in the form of support groups 
    which are comprised of other grieving parents, or professional
    Loss Counsellors (like we saw) who have been helping parents
    for sometime and have good experience in dealing with this kind
    of loss. So, they DO know what you are feeling, or have some 
    psychological basis with which to "deal" with your problem.
    
    However, you do bring up a point - about 10 weeks after our loss,
    I attended a stress-management course here at work, and the
    self-inspection was a little to much for me, as I worked each
    day to keep the emotions in at that time. After I broke out in
    tears at the end of one session, the psychologist seemed appalled
    that we had only had 2 sessions with a grief counsellor and said
    we should be at sessions for a year!
    I had to do a lot of thinking then, and finally decided that I
    wouldn't. Can't say it would have helped one way or the other.
    I don't think I would like to have been pushed either. I felt
    the person we DID see was not very aggressive and this suited
    us fine - we even went back to her once during my next pregnancy
    to help with the anxiety I was having.
    
    Monica 
    
    
502.14More specific infoWEORG::DARROWWed Apr 21 1993 20:4222
In my own case, I wish the doctor or nurse practitioner had offered
me either the name of a support group, or a counsellor.  
They could have offered to set up an appointment for me. I wish they
had stressed that needing support and counselling is not unusual, that
it's normal and not something to be worried or embarrassed about.
Just saying "some people feel depressed" isn't enough. 
They could have even suggested I try such a group/individual
once or twice to see if I needed it or it helped.  Had they 
given me a name, or the times of a group meeting, I would 
have hopefully found the help I needed sooner.

I know that this particular doctor's office now has 1) an ongoing
support group, and 2) referrals to the therapist who I managed to
find on my own.

As an aside, one problem with infertility and pregnancy loss is that
other issues in a relationship often come to the forefront.  Small
cracks can become much larger due to the stress of the loss.  I think
that's all the more reason to encourage counselling.  (I read once
the statistics on divorce following the death of a child ... I don't
recall the figure, but it was pretty staggering.)
502.15WEORG::DARROWWed Apr 21 1993 20:4811
One more comment, then I promise to shut up!

As Monica said in .13, there are counsellors who specialize in
particular fields/areas.

The therapist, who I found thanks to EAP, was experienced in dealing
with infertility and pregnancy loss.  She'd run the counselling program
at the infertility clinic at Brigham's for several years.  That helped.  

--Jennifer
502.16the Nudge has to be subtle, IMOSALES::LTRIPPThu Apr 22 1993 13:2259
    I can't quite remember what the "nudge" was that got me to the monthly
    grief-loss support group at Memorial Hospital (in Worcester), but all I
    can say is they were probably a literal life saver.  Our loss was
    particularly after a long series of infertility workups, hormones, 9
    months of morning sickness (I'm really serious, I was sick from
    conception through the delivery) and so on.  Initially my reaction to a
    stillbirth was that this is so "unnatural" a birth just *can't* end
    this way.  Fortunate for me, my OB was extremely sensitive to my horror
    of finding out that my baby had died in utero, on my due date!  He to
    us to go home, gave me a sleeping pill to take (that is just ONE) and
    told e to come to the hospital in the morning for induction and
    delivery.  The only person who seemed to fall into the category of
    "insensitive claud" would be the woman in the admitting office.  She
    asked me what I was being admitted for.  I said my baby is dead and I'm
    going to be delivered, for some reason that didn't expaliain it enough 
    to her, and she ended up calling the maternity floor for the "official"
    admitting dagnosis".
    
    The social workers and staff were subtle, but strong enough to let me
    know they were there if I needed them.  The left pamphlets, came by
    several times in the two days I was in, and made sure before I left
    that I knew I had the support I would surely need.
    
    I found the support group extremely helpful, it made me feel that what
    had ahppened to us was not the only one it had happened to.  I found
    some who had lost sets of twins, who had experienced multiple birth
    losses, those who , as single parents and some without family, had to
    go it alone, in general I realized that as great as our loss was, we
    certainly were NOT alone in this grieving.
    
    I have since recomended this group to a teen, the daughter of a day
    care provider, who had a late miscarriage at 16-1/2, engaged but not
    married, still in high school, her son lived only an hour.  She is
    still thanking me profusely for suggesting the group.  I even offered
    to go with her to the first meeting, if she wanted someone she knew
    with her.
    
    The hardest part of my experience was because my two sisters inlaw were
    also pregnant, and due only 6 weeks after me.  I was so terrified this
    would traumatize them, and so afraid the same misfortune would happen.
    
    Both Jon and I had a horrible time dealing with my niece's Christening
    only a few short weeks after our loss.  It was like we felt "cheated"
    that this joy of a newborn should have been ours.  We finally had to
    leave, shortly after arriving back at the house after the Ceremony, my
    husband and I kept finding ourselves on the brink of tears, and I just 
    couldn't hold it in any longer.
    
    One in a while either my mother inlaw or one of my sisters inlaw will
    refernce the number of grandchildren or neices and nephews, and they
    omit my daughter in the count.  Depending on my mood at the moment I
    might remind them that their number is off by one.  Most times I just
    say a silent prayer for Stacy, to let her know mom loves her, whereever
    she is.
    
    Sorry to ramble, Funny how she's been in my thoghts a lot lately, maybe
    because he birthday is not that long away.
    
    Lyn
502.17HELIX::LEGERThu Apr 22 1993 14:1334
    Lyn
    
    I can understand where you are coming from re: having someone else due
    around the same time...
    
    When i found out I was expecting, we were the only ones left on both
    sides to have children.  Everone else had alread established their
    families, so everyone was excited for us.  After I loss the baby, my
    sister-in-law became pregnant very unexpectadly.  They did not expect
    her to get prego, and did not really expect to have any more children.
    
    As time is progressing and she is starting to show, I am becoming more
    jealous.  I have these feelings deep inside of me wanting to know why
    they can have another child when they really didn't want one, and the
    one thing I wanted the most was taken away from me.
    
    The other biggest problem I have is my MOhter-in-law.  On my husbands
    side of the family, there are no male grandchildren to carry on the
    name. When I was expecting, they made a big deal of how this could be
    the grandson they have always wanted.  After I loss the baby, nothing
    was said, and then when my SIL became pregnant, now she is shining in
    her her eyes, and she makes comments like maybe A&B will give us the
    grandson, you know, we can't wait too long, I am growing old, and I
    would like to appreciate my grandchildren.  I have a hard time not
    telling her off, so usually I just don't say anythin, and leave.
    
    I guess we all have our own ways of dealing with the pain/loss/greif.  
    I never thought I would still have this much discomfort in talking 
    about it 6 months later.  I am getting better though...It helps to have
    a place like this to find out that others are going through the same
    thing, and its really ok to feel this way
    
    Anne Marie
      
502.18a little push ?ASIC::JPOIRIERThu Apr 22 1993 14:3434
    Tom,  Some of my opinions of "appropriate nudging" from others might be
    saying things like

    "I called the support group at so-and-so to find out when they hold
    sessions, I'm not sure if it will be of any help to you but it wouldn't
    hurt to go once or twice to find out.  It's on X nite at Y time, I
    don't have any plans for then, how about if I pick you up and we'll go
    together"

    Or "I've heard that so-and-so is very good at counseling for these
    situations, how about if I call and make an appointment for you.  I'll
    even bring you myself and we'll go out to lunch/dinner afterwards."

    I haven't (yet) been to counseling after losing our son.  After reading
    Lyn's note, maybe I should.  One of the things that has been hard for
    me was just simply making decisions.  This may sound ridiculous as it's
    been over 6 months for us, but I just haven't made up my mind as to
    whether I want to go or not.  Somedays I'd like to try to work this out
    myself, other days I don't know how I've managed to survive this long. 
    For me, this is a very difficult decision, though can't really explain why.

    Lyn, I too know what you mean about the christening, my SIL who's due
    date was a month after mine, is having her twins christened next week. 
    I think all the family expects us to go but I'm just not sure I can
    handle that.  

    Anne Marie, your jealousy is certainly understandable.  I keep
    thinking that why can my SIL have twins and my baby died?  She now has
    3 and we don't have any.  My sister also had her second on the day that
    our son died, it was her second "oops."  She didn't plan on having any
    children.  
      
    Jean
    
502.19memoriesKAOFS::M_BARNEYFormerly Ms.FettThu Apr 22 1993 14:4345
    it is astonishing how these stories make us remember things in 
    our experience that we may have forgotten or surpressed. (Also
    amazing at there seem to be pinpoints of experience common to so
    many).
    
    I now remember the day Daniel's death was diagnosed. I went from 
    being mildly concerned when I went to the hospital to meet my Doc,
    to being a basket case when they couldn't hear a heart beat. The 
    doc and a nurse were trying to use a ultrasound machine which wasn't
    very good, and neither being a specialist were not succeeding in
    working out what was up with the baby. So it was decided I would 
    go down to the regular ultrasound offices and get me checked there,
    bumping me in ahead of the queue. 
    How vividly I remember me, my husband, the doctor (perched on the 
    bed beside me) and the ultrasound specialist in that little room, 
    all looking at the screen.
    It was somewhat surreal at the time, because the specialist was in-
    credibly robot-like, routinely identifing the parts of the body
    like she was in a biology class and not at all like she was working
    with traumatized parents and a very nervous doctor.
    "This is the head. This is the heart, it is not beating. This is 
    the scrotum, you can see it is a boy. this is the leg....."
    It is at that moment the double whammy hit me that *Bang* the being
    living in side me has gone *BANG* this is my baby, this is my SON!
    The only thing I remember is me saying to my husband.
    "A boy, Alan, a boy".
    And vaguely, being wheeled back up to the labour rooms with my
    doc profusely apologizing for the unfeeling bahaviour of the 
    ultrasound specialist.
    After we got the explanation about waiting with my doc and the 
    senior OB, we were sent to the area where blood tests were performed.
    I felt like I needed some staff member with me as my husband and I 
    wandered through the hospital alone. and how we had to wait in
    the room where parents and small children waited only to get
    a nurse who mumbled things about how wonderful it was going to be
    for me to have a baby, and asking all the wrong things about why I
    was having the blood test (my doc was concerned about toxicity, but
    the nurse kept on quizzing me about had I been ill, or was I bitten
    by an animal or something). I of course started breaking down and 
    all the control I had left vanished.
    
    I am amazed that I had forgotten some of the 
    most tramatic moments of the loss.....
    
    Monica
502.20Thanks for the support!SALES::LTRIPPFri Apr 23 1993 13:1269
    I guess my observation here is that, at the very least, we've formed
    our own mini "support group" right here.  I, personally am very
    grateful that this has happened.
    
    Just a couple further comments and observations.
    
    Since I know my husband doesn't "do" parenting notes, I can make some
    observations.  He seemed to deal with the whole thing of our loss, by
    NOT dealing with it.  He seemed to deal with it in a way of
    frustration. He also mentioned several times how coworkers seemed to
    ignore that anything had happened, or avoided talking to him at all
    about it.  He worked on a dotted line to facilities and security, so it
    was mostly me.
    
    I was outwardly emotional in dealing with the loss,
    however my husband seemed extremely frustrated.  He spent the two weeks
    following the loss on a "H*ll bent for election" method of taking each
    door from our condo, over to his parents home sanding them, and
    restaining them.  No they wern't in that bad of shape.  He just needed
    something physical to do.  I guess I didn't do much better.  I took all
    my blankets, spreads, and curtains to my mother inlaw's and washed
    them.  No particular reason, my excuse was that I didn't want to feed
    coins to the laundry room at the condo.  I became obsessed with selling
    the condo, and getting out.  I reasoned that the woman who lived there
    before us had trouble conceiving, and conceived after moving, and I
    just felt the condo was "spooked" and wasn't made to have children in
    it.  
    
    My husband had given me a fairly large teddy bear the previous
    Christmas, with a note on it's tag that said something like "this is to
    practice on until June".  After we lost Stacy, and the room had been
    returned to a den, I spent many nights in the my grandmother's rocking
    chair with that bear, absolutely sobbing, and asking why God had chosen
    to punish me this way.  I found myself at the interists a few weeks
    later complaining of severe upper back pain, the diagnosis: STRESS!
    
    As for my OB, after the delivery he scheduled an apointment for two
    weeks after.  That day I never got undressed, he had instructed his
    staff (I can only guess) to be extra sensitive to me.  The nurse put me
    in an exam room, with instructions not to get undressed,that the doctor
    only wanted to talk to me.  Everyone on his staff just kept asking,
    very sincerely, if I was doing OK, it was very helpful.
    
    I remember Canobie Lake park that fall, it seemed to me that *everyone*
    was either pregnant or pushing a carriage, much as I had expected to be
    doing.  We didn't stay there long, it was a hard day.
    
    As I went through yet another infertility workup, and eventually became
    pregnant with AJ, the infertility specialist who was the one who just
    about pushed me over the brink of sanity.  Without even doing an exam
    he looked at me and said "no wonder you can't get pregnant, you're too
    overweight.  No wonder you couln't keep your baby alive!"  I was about
    30 pounds overweight, not huge in my opinion.  Let me tell you I was so
    out of  control I went home called my internist, and asked for a
    referral to a psycaitrist(sp?), I told him I needed someone NOW-TODAY. 
    Thankfully he found someone extrmemly sensitive, and I saw her the next
    day.  The specialist's staff kept apologising profusely for his
    insensitivity.  I went back to my OB who agreed the doctor was out of
    line, and he agreed to treat me for my infertility.  
    
    The day I found out I was pregnant with AJ I got the call in the
    office, and began sobbing at my desk.  Someone stopped me on the way to
    the ladie's room and asked if someone had died.  I tried to explain how
    scared I was that this baby too would die before birth.  I spent the
    entire pregnancy terrified that I would never know the joy of holding
    my newborn.
    
    Sorry to ramble, but so glad we've got each other.
    Lyn
502.21RICKS::PATTONFri Apr 23 1993 16:1814
    This string is very moving and I am choked up right now.
    
    A good friend of mine lost a son in utero almost three years ago.
    She wrote the story of her experience, both as support for her own
    grieving and with the intention of educating the rest of the world.
    It was never published, unfortunately. I read it and found it very 
    powerful. If anyone here would be interested in having a copy, 
    please send me mail and I will send you a paper copy via US mail.
    
    This string is also a good reminder for me to be careful not to
    forget the son she lost. I try to refer to him by name every now and
    then to let her know I remember, but it may not be often enough.
    
    Lucy
502.22Future appointmentsCSTEAM::WRIGHTFri Apr 23 1993 16:5618
    When I had my first prenatal check-up at 10 weeks and everything was
    going fine, they had me schedule my monthly check-ups for the next
    few months out.  The next week I was in the OB's office a few times
    as I went through the loss, so the nurses/admin people there definitely
    knew that I had lost the baby.  But one month later, I received a phone 
    call from the office to confirm my prenatal check-up for the next day.  
    I was so hurt that I was rude to them, saying "You KNOW I lost the baby", 
    and slammed down the phone.  I'm embarrassed now that I was so rude,
    but at the time I felt like someone had just snuck up behind me and
    stuck a knife in my heart.
    
    I wish someone in the doctor's office had had a little more sensitivity
    and common sense so that, when I lost the baby, they could have looked
    ahead in the book and erased my appointments.  Or even, gently, asked
    me to tell them when my next appointments were so that they could
    erase them.  
    
    Jane
502.23Mom's ordealMKOTS3::MACFAWNAlyssa and Krystin's mommyFri Apr 23 1993 17:2440
    My mom had 2 stillborns (1 before me and 1 after my brother).  She said
    that after Kelly was born (Kelly was the last pregnancy), the hospital
    staff thought that since she already had 2 children, this trama should
    not bother her that much.  I guess they thought that this was no big
    deal for her.  Let me tell you, it was.
    
    I was 13 at the time of Kelly's death and I was hurting too.  My mother
    received some limited counseling, but I think it would have been nice
    to have counseling for the siblings as well.  I tried to take care of
    my brother, do laundry and cook so that Mom wouldn't have to worry
    about those things. 
    
    My mother seemed to be handling this well, until....the day she cleaned
    up the nursery.  She went into the nursery, pulled everything off the
    shelves, walls and dresser, emptied out all the drawers and sat in the
    middle of the mess and cried hysterically.  I thought the only way to
    help mom was to do the household chores.  If I had known how she would
    have acted, I would have packed up the baby's room for her.  But this
    in itself is a two way issue.  One mother may want to pack the room up,
    but yet another may want to ignore it.  So I would not assume that a
    sister, neighbor, friend, should go over to the house and pack that 
    stuff up for the grieving mother.  But maybe offer to do it for her if
    she feels she cannot.
    
    As mentioned in a previous note, maybe just taking the baby things all
    over the house and placing them in the room and shutting the door would
    be a good thing.  That way, when the mother is ready, she can open the
    door and do it herself, or she may ask to have someone do it for her. 
    But if all the things are in one room and the door is closed, it would
    be easier on the mom and dad.
    
    A hospital should never, ever put a mother of a stillborn in with
    mothers of healthy babies.  This happened to my mom and it literally
    killed her.
    
    Support groups should definately be looked at more closely.  For the
    parents and siblings, and friends/family members.  I think it would
    help everyone deal with the loss.
    
    Gail
502.24my ordealASABET::TRUMPOLTLiz Trumpolt - 223-7195, MSO2-2/F3Fri Apr 23 1993 18:3235
    I lost my first a little over 3 years ago when I was 6 weeks along.  It
    was the hardest time of my life (besides losing both my parents last
    year 6 weeks apart).  My OB was very sensitive and very helpful to me
    and so was the staff in the office.  They offered me video and books to
    read to help me get through the loss.  I lost the baby at home and
    didn't need to have a DNC because everything came out at home.  I bleed
    very heavely and they had to put me on mega vitamens to build my system
     up.  I also had to be rushed to the hospital 2 days after the loss
    because I was bleeding so heavely That I was so run down I couldn't
    even stand up.  The hospital staff was very nice to me when I went back
    in a week later for blood test.  This was extremly hard on my mother
    too.  She was with me the day I lost the baby and it brought back sad
    memories of the two she lost.  One of which was a set of twins and
    thats what the doctor told me she suspected mine was becasue of all the
    clots, etc. that I lost at home.  The reason for losing my baby was
    that it did not attach to the wall of my uterus right and gave away. 
    My husband dealt with the loss like Lyn's.  He had to do phsical things
    to take his mind off of it and very rarely talked about it to his
    friends/co-workers.  The only person he would talk to about the baby
    was me.  
    
    Three months later I got pregnant with my son Alexander.  When I went
    in for my first prenatal check up the nurse practioner couldn't find
    the heart beat which got me scared and thinking that I was going to
    lose this one also.  She suggested an ultra sound and I agreed.  They
    sent me dowwn and the techncian found the heart beat and it was beating
    so strong and healthy.  She even measured the baby for me.  I had an
    ultrasound the day I lost my first and they technican was very nice and
    sensitive to my needs.
    
    I tell you I would not wish this on my worst enemy.  It was the hardest
    thing to go through, and I'm glad that Monica started this note to help
    us all deal/talk about our loses.
    
    Liz
502.25Never say neverTLE::JBISHOPFri Apr 23 1993 18:3540
    re .23 "never, ever"
    
    This has come up before (and I've answered before), but I have to
    respond to:
    
    >   A hospital should never, ever put a mother of a stillborn in with
    >    mothers of healthy babies. 
    
    I'm sorry it was hard on your mother, but it probably wasn't the
    thing that killed her (you did say "literally").
    
    Remember that the alternative to the maternity ward is either a
    general ward, which says "you didn't have a baby, you had a tumor",
    or a private room, which many people can't afford.  My wife and I
    appreciated being treated as parents, even if we didn't have a 
    baby anymore.
    
    I'll agree that sharing a room or a ward with mothers who have living
    children is bad--and bad for the other mothers, too--but what's the
    alternative?   It's not fair to comdemn something as no good unless
    you have a substitute in mind.
    
    It's only fair for me to say that we had a room to ourselves (they let
    me stay overnight with my wife) due to lack of demand, so perhaps
    we're really arguing about being alone vs. being in crowds--in which 
    case we agree!
    
    For me, the fact that I got to hold Christopher (and later Jenny),
    talk to him and kiss him good-by was the most healing event in
    retrospect (though it sounded kinky when the nurses suggested it).
    
    Finally, hospitals aren't good about deaths in general, even though
    people die all the time (probably a daily occurance in some large
    hospitals).  I was the lucky recient of the call announcing my
    grandfather's death--the caller just said "Mr So-and-so passed away,
    what do you want done with the body, we need an answer in twenty-four
    hours, bye."  I don't think they train the people who make those
    calls.
    
    		-John Bishop
502.26BRAT::WOODARDFri Apr 23 1993 18:4357
    Our daughter Chelsey was stillborn when I was 1 1/2 weeks overdue. 
    Wentworth Douglas Hospital couldn't have done much better in handling
    everything that had happened.  
    
    The staff was very supportive.  One of the nurses on the floor who had 
    lost a baby and helped to run the support group came in and talked with 
    us for a while about things that had happened and might happen.  
    
    They gave us a choice as to whether we wanted to stay on the maternity 
    floor or somewhere else in the hospital.  When we chose to stay on the 
    maternity floor they gave us a private room at the end of the hall and 
    put a picture on the door so that anyone entering the room would know 
    that we had suffered a loss.  They also brought in a cot so that my
    husband could stay the night.
    
    After Chelsey was born, they didn't rush us.  We were allowed to take
    as much time as we felt we needed with her.
    
    Before we left they gave us a package that contained all kinds of books
    and pamphlets on infant loss.  It also had the name and phone number
    for the support group and the names of some therapists that deal with
    infant loss.
    
    Another thing that was nice was that the midwife that delivered Chelsey
    called every 2-3 weeks for a few months to check on how we were doing
    and to talk about everything that had happened.
    
    I have to agree with a lot of the other notes here in that the pictures
    the hospital took were poor.  Luckly we brought our own camera so we
    were able to take some better pictures.
    
    I also wish they had more strongly suggested counseling.  We tried the
    support group after about a month.  I don't know if it was too soon for
    us or we just picked a bad night but the few people there left us
    feeling more depressed - kind of like the glass was always half empty -
    we were looking for some hope that things would get better with time. 
    After about five months we finally went to a therapist who specializes 
    in infant loss.  We wish that we had gone sooner - it would have helped 
    a lot and saved us from some of the problems that we have had.
    
    As far as after leaving the hospital, we were lucky in that we had the
    support of both of our families and a lot of friends.  One thing that
    really hurt was coming home and someone had moved the porter crib from
    our bedroom into the baby's room.  Just seeing it missing really made
    things hit home.  I know the intentions were good.  But then again, if
    it was still there it probably would have hurt just as much.  I'm glad
    that people didn't pack everything up.  It would have felt as if people
    were trying to pretend that Chelsey never existed.  I've put away some
    things myself.  The next step is packing up the rest of the stuff with
    my husband.  The therapist said it would help to put some closure on
    everything that happened and then when I'm pregnant again we will be
    bringing out the things for a new baby not just keeping Chelsey's stuff
    so the new baby could use them.
    
    That's all I can think of for now.  Sorry for rambling.  If I think of
    anything else I'll let you know.
    
502.27some moe insightsCLO::KOBILARCSIKMon Apr 26 1993 15:2863
    
    I lost my son, Nicholas, at 20 weeks pregnant on Nov. 30, 1991.  I
    delivered him at Mt. Sinai Medical Center in Cleveland Ohio.  
    
    Most of my experiences with my OB, the nurses, etc. were positive ones. 
    My OB had hand picked the nurses to care for me that day.  It helped
    that we had a few days to plan it and that he sits on the board of
    directors at this hospital.
    
    The first nurse had lost a child at 8 weeks old to SIDS.  She came and
    sat on the end of my bed and talked to me for quite awhile before they
    started inducing me. She was the first to suggest holding him and at
    that time I didn't think I wanted to.  She didn't push, no one there
    did, but she shared with me experiences of others who didn't hold their
    babies and then regretted it later.  And she said no one she knew that
    held their baby ever lived to regret it.
    
    Another thing that was really good for my husband and relatives in the
    waiting room was a social worker that came by.  I was too drugged up at
    the time to talk to her (they were very generous with painkillers
    during those 24 hours it took), so she talked to my husband a great
    deal and then went to the waiting room and talked to my parents,
    in-laws and SIL, who 'camped out' in the lobby for all 24  hours.  She
    told them about how I might be feeling afterwards, what to say to me,
    what not to say to me, how it would take a very long time to get
    through the grief, how they could help me get through it, and how
    important it was for me to hold him, and for all of them to hold him
    too.  
    
    This is what convinced them to hold him.  When my husband told me that
    everyone wanted to come in and hold Nicholas, I knew for sure that I
    would too.  They all gave me the strength to do this and they had the
    strength because of that social worker.  
    
    I realize now, my only reasons for not wanting to hold him came from
    pure fear and my family together helped me overcome that fear thanks to
    this woman.  I cringe when I think, what if she and the nurses hadn't
    gently urged us?  I know I would've regretted it my whole life.
    
    The hospital actually sent a nurse TO MY HOUSE a few days later to give
    me a quick physical AND emotional check-up.  I wasn't really ready to
    talk about the emotional side too much, but had lots of questions about
    what was happening to me physically, and she answered everything in the
    privacy of my home.  This was great!  Then she wrote everything down
    for me (thank goodness).
    
    The nurse that helped deliver him in the end was the best too,
    afterwards, she hugged me and cried with me.
    
    This has nothing to do with the professionals who helped me that day,
    but by far, the best thing anyone said to me that week and since, came
    from my favorite Aunt, who suffered several miscarriages and lost a
    baby at 4.5 months.  She called a few days after and I started to cry
    immediately upon hearing her voice.  She said, "It's ok, you don't have
    to say anything right now, just listen. When you are ready to talk, I'm
    here.  I'll come over and we'll sit and talk.  Did you name him?"  I
    managed to get out a 'yes' and told her Nicholas.  She said "Good, now
    we have a Nicholas in the family".
    
    I remains the best thing anyone has said to me since.
    
    Peace to everyone in here!
    Loreen
502.28Born too soon, sort of realisticSALES::LTRIPPWed Apr 28 1993 14:1713
    Just wondering how many of us watched the movie last Sunday "Born too
    soon"?  Although it was obviously very "Hollywood", it was at the same
    time extrmely realistic.  I'm not sure that premies progress quite that
    way, but what I can say is that it was one of those "box of tissue"
    type movies.  The ending was something I really shed a lot of tears
    over.  I think it was based on a true story, real family.  The mother
    kept blaming the air flight on her premature labor.  True or false, who
    knows.  But with all the corporate travel this company does, it really
    makes you stop and think.  I'm just glad my job doesn't require me to
    travel.
    
    sniff!
    Lyn 
502.29Can't watch thatKAOFS::M_BARNEYFormerly Ms.FettWed Apr 28 1993 14:5517
    There is some kind of unspoken agreement between Alan and I
    that we don't watch those kinds of movies any more. I am usually
    under very good control, but since Daniel's birth, I seem
    to be very out of control, and I feel surprised and embarrassed 
    each time I loose that control (did it once in a movie theatre
    with some friends).
    
    Very brave of you, Lyn!
    
    I also refuse to go on training (i.e. travel) when pregnant and 
    my manager respects that. Not so much for the flight, but that I will
    be alone in a strange place (without Canadian Medicare!), in case of
    trouble. But that is another subject.
    
    Monica
    
    
502.30it still hurts even nowSALES::LTRIPPWed Apr 28 1993 19:4217
    I need add an interesting reflection.  Last weekend I was given a
    flower corsage, as a sort of "thank you" for participating in a
    function.  What I have done in the past is to take them to Stacy's
    grave, and use one of the large stick pins to sort of anchor it to the
    ground so it won't blow away.  I just realized that the week is almost
    over and I haven't brought the flowers to her.  I guess the mind is
    making me forget them, because it seems just as hard now as it was the
    day we lost her.
    
    We have started a tradition of leaving pink sweetheart roses, one for
    each year she would have been, on her birth date.  I have the florist
    do one of those tiny enclosure cards, and seal it in plastic, and put
    something like Happy Birthday, we miss you, love mom and dad.
    
    Too much for now, got to go find a tissue.
    
    Lyn
502.31I watched the movie, and criedUTOPIA::CHADSEYThu Apr 29 1993 11:036
    I watched the movie, born too soon......  It reminded me again at what
    an amazing mircle it was that my Heather survived at all.....  (She was
    smaller, younger and sicker then the baby in the movie)  The major
    thing that I learned from my experience with Heather is that there are
    no guareentees on how long our children are with us.  That each moment
    is a precious gift.    
502.32TRUE STORY, THERE'S A BOOKCSOA1::KOBILARCSIKThu Apr 29 1993 14:2428
    
    I didn't watch the movie - didn't think it wise right now. However, 
    she (the mother portrayed in the movie) wrote a book about it.  Yes,
    it's a true story, and I did read an excerpt of the book last year. It
    was in Reader's Digest 'book feature'.  Can't remember which month but
    have it at home.  
    
    I don't know how the movie ended, I assume with Emily's death.  I hope
    they told you though that Elizabeth and Fox (the parents) went on to
    have a son and named him Sam.  
    
    I don't know if this is true or not, but a doctor told me (not an OB)
    that flying above 30,000 feet is equivalent to receiving a low dose
    x-ray.   Of course, thousands of pregnant women fly with no problems
    and thousands of pregnant women have x-rays before they know their
    pregnant  (or after if benefit out weighs risk) and their babies are
    OK.  Personally, you wouldn't even get me through that security thing
    at the airport (which my doctor says also emits some radiation - 
    like standing next to a microwave for a minute, which I also don't do).
    Plus, like Monica said, if anything's going to happen, I want to be
    here, with my doctor and my husband.  
    
    I did go to Chicago during my first month, didn't know I was pregnant.
    Bummer.
    
    Loreen
    
    
502.33AIr travel?DV780::DOROThu Apr 29 1993 17:046
    
    Can anyone point to any studies on the air travel thing?  I was very
    lucky; no problems and I have to fly a fair amount with this position,
    but it always made me nervous.
    
    Jamd
502.34back to the subjectKAOFS::M_BARNEYFormerly Ms.FettFri Apr 30 1993 15:0820
    At the risk of usurping a moderator's role here, I would like
    to ask folks to go back to the subject I introduced in the basenote.
    I am also guilty here of riding through this slight rat hole, but
    I would like to help put this back on track.
    
    I have started to ask around for other people who are connected
    to various hospitals here in Canada about their staff and their
    procedures involved in perinatal loss. I've already gotten some
    mail from some of you about other private contacts. I would
    be very grateful to anyone who "happens to have a chat" with
    their neighbor who is a nurse, for instance, that could garner
    us more names from more places.
    
    And so far, I thank you ALL for these wonderful portraits of
    your terrible losses. I am very pleased at how open you all
    are about this, and as always, thanks for supporting ME with
    my loss. This is the kind of thing that helps me remember my
    Daniel all the better.
    
    Monica
502.35eight years, and still tearySALES::LTRIPPThu Jun 10 1993 20:429
    Tomorrow, June 11 is the 8th anniversary of Stacy's birth, and our
    loss.  I guess I just had to tell somebody, because I still get teary
    eyed about it.  It doesn't get any better, eight years later.
    
    We will bring the traditional pink sweetheart roses to her grave, one
    for each year.  Someone here at work said today I looked a little
    "down"  Guess it still shows.  No one here knows about my loss.
    
    Lyn
502.36hugs...KAOFS::M_BARNEYFormerly Ms.FettThu Jun 10 1993 21:2310
    >>> No one here knows about my loss.
    
    But, we know, Lyn. Many hugs (next week is the 2nd anniversary
    of Daniel's burial (planting of the blue spruce and burial of 
    his ashes beneath it).
    
    Me too.
    Thanks for sharing.
    
    Monica
502.37SUPER::WTHOMASFri Jun 11 1993 01:297
    
    	Yes, we here know about both (and all the rest of you who have had
    the courage to share) of your losses.
    
    	Much sympathy and healing wishes to you all.
    
    			Wendy
502.38CSC32::DUBOISDiscrimination encourages violenceFri Jun 11 1993 20:5138
for those hard days...

     Carol












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502.39How to say I'm thrilled when....SALES::LTRIPPWed Jun 23 1993 16:3236
    I really need to tell anyone who will listen that I'm having a hard time
    right now.  Specifically my husband's "kid" sister called last Monday
    night to my inlaws, we happened to be there celebrating Father's day a
    day late at the time.  She was calling to let her parents know that the
    EPT test had turned bright pink, and she was pregnant.
    
    Don't get me wrong, I really am thrilled.  In fact I knew she was
    having some infertility problems and was even going to enter a note
    about it here.  But now that she is pregnant I am having a very hard
    time dealing with it.  I guess I feel somehow jelous, cheated, I'm not
    sure exactly what I'm feeling.  I'm scared to death that she could
    miscarry, have a stillborn like we did, have a child with birth
    defects, and so much more.  I guess I want to be happy for her, but the
    realities that I've experienced over child bearing is sort of getting
    in the way.  the jealous feelings are knowing that I would love to have
    another child, but know I can't conceive without much "ado", planning,
    hormones, and 9 months of terror.  I don't know how to tell her I'm
    thrilled for her, she too knows the heartbreak of infertility problems,
    without sounding pessimisitic, or is it realistic, or bursting her
    bubble.
    
    She's not due until February, and I'm already having anxiety over
    dealing with the Christmas holidays, which will be sure to be filled
    with 'baby things", and a baby shower which I ofcourse will be
    obligated to attend and act thrilled to be there.
    
    Ironic as it may sound, this is the woman who announced several times
    publicly that she wanted absolutely NO children, no time or patience
    for them.  But when she got bit by the "need children" bug, she really
    went for it bigtime!
    
    Sorry for babbling, I guess I need some feedback to sort out what I'm
    really feeling about this, considering where I'm coming from.
    
    Lyn
    
502.40Take care of youCSC32::DUBOISDiscrimination encourages violenceWed Jun 23 1993 19:1518
Your feelings are perfectly normal, Lyn.  It is understandable that
you would have this anxiety, jealousy, anger, fear, etc.

Now you need to let go.

Take it one day at a time, if you need to.  Don't worry about Christmas,
the baby shower, and so on.  Just think of today.  If your mind strays to
fearful things about what might happen to this baby, then concentrate
on something else.  Your worrying won't help her, and in this case it will
only cause you more grief.

If you need to take care of you for your own loss, do it.  Do something (lots
of things) nice for yourself.  Take care of yourself and let her take care
of her for now.

    Hugs and love,

        Carol
502.41faithKAOFS::M_BARNEYFormerly Ms.FettWed Jun 23 1993 19:1814
    Lyn, remember how you needed to reassure yourself each day, each
    moment that your pregnancy with AJ wouldn't end in tragedy? How at
    times you were pessimistic but then looked around and noticed how
    everyone else seemed to do it, so why not you? Dig for that precarious
    balance you did then, the hope you needed to have and make that feeling
    help you deal with your sil's pregnancy. 
    Your SIL knows about your experiences, she knows her risks (probably 
    more acutely so, as a result of your experiences than more other
    first time expectant mothers). 
    Bring out that hope, give AJ a hug and know that things CAN and WILL
    turn out okay. 
    
    Monica
    (I get scared when ANYONE I know gets pregnant!)
502.42HELIX::LEGERWed Jun 23 1993 20:3520
    Lyn
    
    I can understand where you are coming from....The same thing happned to
    me a few months ago... ( I lost one, and the S-I-L who wanted NO more
    kids etc, became prego...) I too had a hard time dealing with it, and
    knowing what to say/act, and did not look forward to seeing them at
    family gatherings...
    
    This note file, and all the people in it have been a wonderful support
    line, and I just know that as time progresses, you will find it easier
    to deal with, as I have.
    
    Right now, I am 10 wks along, and I am still very nervous that
    something is going to happen, while she is at 5 months, and showing and
    having a normal pregnancy.....
    
    My thoughts are with you....
    
    Anne Marie